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Organization Information CFC Code: 10239
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Muscular Dystrophy - FSH Society

(aka) Facioscapulohumeral Society, Inc.

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450 Bedford Street Lexington , MA  02420 Phone 781-301-6060


Fund research leading to treatments and cures for FSHD, the most prevalent hereditary muscular dystrophy. Provide support, no patient need face this disease alone.

Real Life

The FSH Society established a research program at a time when none existed, by recruiting scientists and advocating for FSHD research. Since then, the Society has funded over $5 million in research grants, which have been leveraged to over $78 million in funding from the National Institutes of Health and other organizations. Today, researchers are closer than ever to a cure. With your help we can get there.


"This is an investment, not a contribution. I have strong confidence that it will be used to its maximum benefit for all of us affected by FSHD. It is truly a blessing to invest in an organization that does it right."